Coda to More of that stuff they don’t teach you about in epilepsy school

That ephemeral sensation of newness is gone now. It lasts a day, maybe two, and then disappears like a morning fog. I’d never written about it before. If I hadn’t written about it I’d never even know about it, it’s so fleeting, no more permanent than a dream you can’t remember the details of an hour later. Kinda cool, like so much of this epileptic shit, in a fucked up sorta way.

More of the stuff they don’t teach you in epilepsy school

After a dozen hours of sleep the brain has settled down nicely. Realized I hadn’t been outta the house for a couple days and went to take down some bags to the bins and get the mail and I had this inexplicable trepidation. When I went outside it was like I’d never done it before. All these synapses reconnecting and remembering. All kinds of things are like that, each task a little adventure. I emerge from these epileptic interludes and the brain is reconnecting so many memories of even basic tasks. When I do them it’s exciting because it feels brand new. So these next couple days I’ll be doing stuff as if for the first time, reconnecting with the world again. It’s kind of wonderful, actually, if a little intimidating. It’ll pass in a day or two. More of the stuff they don’t teach you in epilepsy school because I suppose only epileptics experience it. I suppose if didn’t write these things down I wouldn’t remember them at all because the experience is so ephemeral. By next week I won’t be able to imagine this sensation at all. Then at some point will some another week or two of an epileptic interlude, after which I’ll go through this again, and it will all seem brand new, and I’ll walk down the stairs again as if it were the very first time.

More of the stuff they don’t teach you in epilepsy school

After a dozen hours of sleep the brain has settled down nicely. Realized I hadn’t been outta the house for a couple days and went to take down some bags to the bins and get the mail and I had this inexplicable trepidation. When I went outside it was like I’d never done it before. All these synapses reconnecting and remembering. All kinds of things are like that, each task a little adventure. I emerge from these epileptic interludes and the brain is reconnecting so many memories of even basic tasks. When I do them it’s exciting because it feels brand new. So these next couple days I’ll be doing stuff as if for the first time, reconnecting with the world again. It’s kind of wonderful, actually, if a little intimidating. It’ll pass in a day or two. More of the stuff they don’t teach you in epilepsy school because I suppose only epileptics experience it. I suppose if didn’t write these things down I wouldn’t remember them at all because the experience is so ephemeral. By next week I won’t be able to imagine this sensation at all. Then at some point there will be another week or two of an epileptic interlude, after which I’ll go through this again, and it will all seem brand new, and I’ll walk down the stairs again as if it were the very first time.

Random remembrances

I’ve noted over my lifetime that after a long bout of a surge in epilepsy, as the brain settles down and its plasticity begins repairing and reconnecting things, that new memories well up, in scattered bits and small pieces of past times. They pop up in anecdotes, unconnected, details I’d forgotten or entire events, people I hadn’t thought of in years, memories of sensations long past. It’s always disconcerting but it’s fun too. When you lose long term memories you don’t really notice. They’re just not there anymore. If it happens a lot over your entire adult life it doesn’t bother you much at all. You don’t miss what you no longer know you had. It’s not like you suddenly can’t remember something. You don’t know you ever remembered it at all. It’s only when you’re around people talking old times and you have no clue what they’re talking about that it gets disconcerting. Otherwise you’d never notice at all. Memory loss is a lot more disturbing to those who do remember than to those who can’t.

Which is what makes these sudden refound memories so oddly disconcerting. Things that were no longer there are instantly there again, bits and pieces of your past existence so vivid, so real, in full color. You can hear the voices, feel the feelings. You can almost reach out and touch them. They’re all non-sequitors, of course, it’s not like you’ve recovered complete files on your hard drive. These are just almost randomly placed memories that have been reconnected by a newly repaired or rerouted neural connection. Memories are “stored” in different places all over the brain, and any neural rewiring is bound to uncover a few, though not in any organized or systematic patterns I’ve ever noticed. They’re just random remembrances, like finding a drawer full of old post cards and Polaroids. Just anecdotes. I’ll bring them up a couple at a time in conversation so they don’t throw anybody—if you suddenly begin remembering too much stuff at once people get weirded out (people are very easily weirded out), or they spring up in vividly detailed emails or Facebook posts or blog entries. If I write them down the memory hardens, if I merely talk about them they can blow away, though sometimes I’m not sure how much that I’m writing is what I actually remember and how much is me fleshing out the details to make the writing prettier. In the end it comes down to what makes a good story, I suppose, and none of you readers will know any better or care if the writing is good enough, and the refound memory hardens into the usual mortar of fact and fiction that binds human memory together anyway.

The crime of epilepsy

I see that the cops in Fresno worked over, cuffed and arrested a kid having a seizure. Resisting arrest. Have a seizure in public and you risk being taken down hard by the cops. Your flailing will be seen as resisting, your failure to respond will compound it. Sometimes they drop the charges. Sometimes they haul you into court. If it gets into the press it will have a news cycle for a few hours and then disappear, as epilepsy is not one of the socially acceptable disabilities. In the twenty years I’ve been following these incidents this has never changed. Same police ignorance and cruelty, same media inattention, same public indifference. A uniquely American phenomenon, I might add. We’re notorious for it. The last developed country that can’t shake its fear of our demonic possession. Progressives are just as weirded out by seizures as white extremists, though progressives at least have given up on euthanasia as the solution. We’re even allowed to marry now.

This writing thing

I’ve been asked about this quite a few times and blew it off, but here goes.

I don’t know where my writing ideas come from. They seem to happen on their own. I don’t think about writing when I’m not writing. And there’s no inspiration or spark or preparation. I just start typing and essays come out, fully formed. Everything you read by me is first draft and unedited. I check for typos, homonyms, dropped words. I may go back and alter the punctuation slightly. On rare occasions one of my long trumpet solo sentences may be too long and I’ll bust it up, but that involves merely deleting a word or a comma, no rewriting. That’s it for editing.

I try to keep everything simple, I never put anything in quotation marks, try and avoid parentheses, and don’t boldface, italicize or underline. I have a very spare palette of punctuation—commas, periods, ellipses and em dashes, and I use exclamation points and question marks as little as possible. I try to do everything with words and pauses.

I write almost everything in an implied second person. That is, I write in the first person but through the eyes of the reader. And I avoid adjectives and adverbs whenever possible, and emphasize verbs. Nearly everything I write is in terms of action or movement.

And like this, the things always seem to know when to end on their own. So I let them finish. I leave a lot of them hanging, unresolved, something I picked up from bossa nova. But I never go beyond where the thing ends, I never try to outthink the writing.

That’s it, without getting into all the linguistics and neurology.

A twenty something brain

Watched a Jazz Messengers gig from Paris in ‘59 and Lee Morgan, all of 21 years old, was unbelievable. Astonishing creativity. The chances he took and never flubbed in those solos, leaping over precipices, seeing around corners, weaving a short story’s worth of narrative into every solo…. damn. When you’re that young all this stuff is new and you’re seeing these things for the first time; your brain is a huge mass of neurons you’re exploring for the first time, and the neural pathways you follow can become established routes you’ll follow again and again. You could hear those in his playing, the licks and ideas that would come up over and over again during his career. And you’d hear things he might have explored just that once and never gone back to. As you get older and older you do that less and less, the brain hardwires into distinct paths that you perfect and improve and the other synapses wither and disappear and ideas you had at 21 will never be there again. Possibilities disappear. Eventually you don’t even see those pathways anymore. You read stuff you wrote forty years ago and have no idea of all the possibilities that were before you then but you weren’t yet good enough to write them down. A twenty something brain is a marvelous thing, a mass of neuronal potential just waiting to be shaped, trillions upon trillions upon trillions of possible thoughts, and we will never have that range of cognitive possibilities before us again.

Last night words kept me up

[This is from 2010, and I just found it buried on BrickWahl.com. This reads so epileptic to me now.]

Last night words kept me up, some piece coming together that I couldn’t shake.  It developed paragraph by unwritten paragraph inside my skull till finally it completed itself and let me sleep after two in the fucking morning. That happens a lot. When my med levels are off it happens more. I dreamed another story, dreamed I was writing it, till it woke me around 5 am. I laid there sleepy with this fucking story going through my head. A ridiculous 5 am story…I never use 5 am stories. Men are crazy at 5 am. Maybe you’ve noticed.

No writing  today, nothing. No emails today, but this one. Hopefully no stories tonite. I wish I knew why that happens, but it’s always happened. Just words, man. It’s like I’m practicing. Working things out. Well, not me practicing, but it, the language. It sits up there in our brain, an actual thing, and it sometimes make us do things that not to our advantage. This isn’t LSD talking…it’s actually neuro-linguistic theory, one rather difficult to grasp. It’s just too weird. Anyway, this language thing gets stirred all up in there round that hole in my brain in the Broca’s region and doesn’t give a flying fuck about what the rest of the body needs, or wants. Namely sleep. But tonite I sleep. I promise.

I’ve heard of musicians tormented by the music in  their heads. It’s the same thing, I bet. The music being created incessantly and the poor bastard whose brain contauins it wishes it wasn’t there. Creativity, it’s wildly overrated.

Anyway I have more to do before I go home. Then I watch a hockey game and we order a pizza and drink beer and talk and I go to sleep.

Hypergraphically discussing hypergraphia

Not going to delete the blogs, tho’ I’d love to. It’s not the solution, tho’ it seemed like a great terrible idea at the time. Seriously, I was all ready to get rid of 90% of everything I’d ever written to reduce clutter. How’s that for a revolutionary act? The Pol Pol approach to website management. It would have been so easy too….

The problem for me is that what’s left of my epileptic brain must have everything as spare and orderly and uncluttered as possible or it gets thoroughly discombobulated, and dealing with one blog, let alone six, is as discombobulating and un-uncluttered as anything. Sort of like that sentence. There’s just too much there on a blog, too many options, too many zillions of words a link away. Too much past thinking sparked to life again. Stuff that didn’t bother me just a couple years ago is a problem now. I was planning to deal with my own hypergraphic literary output like I’ve dealt with the rest of my life, by minimizing everything. Part of my excruciatingly dull mellow epileptic lifestyle therapy. Which works, actually. Destroying all that writing would have been quite epileptically therapeutic. Nor would it have bothered me much. Things would be much simpler, and I can always just write more. After all, it’s not about the writing, it’s about writing. What’s written doesn’t matter, but writing it does. That’s hypergraphia in a nutshell, a phrase I can’t stand, but it is.

It also shows that I see all this writing as a symptom of my epilepsy. For instance, I’ve had a mild bug these past couple days. A very mild bug, one of those things I’d never notice except that, as bugs will, it’s kept the liver busy dealing with it and interferes in the metabolization of my seizure meds, reducing their effectiveness, which leads to an increase in synaptic overstimulation which invariably increases symptoms of hypergraphia. Thus lots of posts on Facebook and a sudden increase in blog activity. When I look though my blog I can see the epilepsy. I can see it in the long paragraphs, in the sharing of absurdly detailed personal discussions, in the self obsession, and in words like un-uncluttered. Neurologists have asked me questions about my writing because it is such a classic symptom.

When the bug departs the posts will slow, the blogs will see me only occasionally, my mind will not be awash in language. And over a lifetime I’ve learned not to give in to epileptic whims. So no purging of the blog. It was fun to think about, but I’ll have to think up something else.

Sigh….

Unfriending

As part of my excruciatingly dull mellow epileptic lifestyle I had to cut off contact with some people who, through no fault of their own, were really bad for my epilepsy. Just too intense, too volatile. I never told them. I just sort of slipped away. Now I’m having to do the same on Facebook, where a few people are too intense and volatile, too aggro, too competitive and too serious for my epileptic brain. So I just quietly unfriend them. It’s a creepy way to go about it, but I have to avoid confrontation. It’s not that my ego or feelings or anything like that were hurt. I have such a limited emotional range left after decades of epileptic damage that it’s pretty hard to hurt anything. But it does cause epilepsy problems. It’s just that it’s really not a good idea to go off on an epileptic. It causes us brain damage. Synapses fry, memories are lost, we get confused. Let’s just say it heightens the epileptic experience.

Anyway, I just had to unfriend a couple friends. What can I say.